Haemnet’s VWD360 study aims to understand the real-life impact of von Willebrand disease and bleeding on affected people.
This includes experiences of bleeding, impact on quality of life, access to different treatments, and satisfaction with current treatment and management. Get in touch using the details below to find out more and/or to participate.
Contact Dr Kate Khair:
research@haemnet.com
By emailing us, you consent to us storing your email address and contacting you about the VWD360 study.
About VWD360
There are three parts to the VWD360 study:
- An online survey that should take no more than 20 minutes to complete
- In-depth interviews about living with von Willebrand disease
- A bleed diary study designed to capture real-life bleed rates
To participate in VWD360, you must be an adult, aged 16 (in UK) or 18 (USA) years or above, with a confirmed diagnosis of von Willebrand disease of any sub-type or level.
You will need a code to participate in the survey.
To thank you for your time in completing the survey, we will send you an Amazon gift voucher for £20, $20 or €20 (depending on where you live).
